Por: NBC 6 South Florida World December 19, 2022
Nicole Cimbura via AP For two years, Becky Mourey pushed the to approve an experimental drug for her Lou Gehrig’s disease. She went to members of and health regulators to make the case for Relyvrio, until patient-advocates finally prevailed. In September, Relyvrio became only the third drug approved in the U.S. for ALS, or amyotrophic lateral sclerosis, an incurable neurodegenerative disease that is usually fatal within five years. But... + full article
CBS News USA Politics September 28, 2023
Federal health advisers voted overwhelmingly against an experimental treatment for at a Wednesday meeting prompted by years of patient efforts seeking access to the unproven therapy.The panel of Food and Drug Administration experts voted 17-1 that drugmaker Brainstorm's... + más
What is ALS? Experts explain symptoms to look out for, causes and treatments | CBS News
Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it works | ABC News
ABC News USA Health September 25, 2023
WASHINGTON -- The Food and Drug Administration meets this week to consider approval of an experimental treatment for Lou Gehrig’s disease, the culmination of a yearslong lobbying effort by patients with the fatal neurodegenerative disease.Those advocates still face one giant... + más
Experimental treatment pushed by ALS patients gets day before FDA, but agency unconvinced it works | WPLG Local 10
WPLG Local 10 USA Politics September 25, 2023
WASHINGTON – The Food and Drug Administration meets this week to consider approval of an experimental treatment for Lou Gehrig’s disease, the culmination of a by patients with the fatal neurodegenerative disease.Those advocates still face one giant hurdle: FDA regulators say... + más
CBS News USA Health August 08, 2023
Sandra Bullock's longtime partner at age 57 after privately battling ALS, or Amyotrophic Lateral Sclerosis, for three years, his family said. The news brought new attention to the disease and prompted questions about what the diagnosis means.ALS is a progressive... + más
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ABC7 USA World April 26, 2023
a new drug Tuesday to treat a rare form of amyotrophic lateral sclerosis, or ALS.The drug Qalsody (tofersen) is expected to help people with a very specific mutation, SOD1, which applies to only 2% of the ALS population.In a statement, the FDA said it estimates there are fewer... + más
FDA gives OK to new drug to treat rare form of ALS | ABC7
FDA approves new drug for rare form of ALS | ABC News
WPTV USA Nation October 04, 2022
Imagine being trapped in a paralyzed body. That's how the describes the progression of a neurological disease called ALS, which 31,000 people in the United States are living with.Thankfully, there is hope for a better quality of life thanks to a drug that the Food and Drug... + más
FDA approves ALS drug partly funded by Ice Bucket Challenge | 10 WBNS
Highly debated Amylyx Pharmaceuticals ALS drug wins FDA approval | New York Post
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