Por: The New York Times Health December 19, 2022
Susannah Rosen, 8, spent much of her childhood in hospitals in New York City as doctors documented the gradual loss of her ability to stand, walk and see.But on a visit this October, her parents thought for the first time that she might leave the hospital better off than before. That’s when surgeons infused a drug into her spine to fix the ultrarare genetic glitch that had vexed her nervous system since infancy.“Every other time we go into... + full article
10 WBNS USA Nation December 19, 2022
WASHINGTON — For two years, Becky Mourey pushed the Food and Drug Administration to approve an experimental drug for her Lou Gehrig’s disease. She went to and health regulators to make the case for Relyvrio, until patient-advocates finally prevailed. In September, Relyvrio... + más
ALS patients contend with $158K price tag on new drug | ABC News
ALS patients contend with $158K price tag on new drug | Associated Press
Los Angeles Times USA World December 19, 2022
For two years, Becky Mourey pushed the Food and Drug Administration to approve an experimental drug for her Lou Gehrig’s disease. She went to members of Congress and health regulators to make the case for Relyvrio, until patient-advocates finally prevailed. In September,... + más
ABC News USA Health December 18, 2022
WASHINGTON -- For two years, Becky Mourey pushed the Food and Drug Administration to approve an experimental drug for her Lou Gehrig’s disease.She went to members of Congress and regulators to make the case for Relyvrio, until patient-advocates finally prevailed. In September,... + más
ALS patients contend with $158K price tag on new drug | 10 WBNS
Associated Press USA Politics December 18, 2022
WASHINGTON (AP) — For two years, Becky Mourey pushed the Food and Drug Administration to approve an experimental drug for her Lou Gehrig’s disease.She went to and health regulators to make the case for Relyvrio, until patient-advocates finally prevailed. In September,... + más
10 WBNS USA Nation October 03, 2022
WASHINGTON — When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay? Responsibility for funding so-called has always fallen to drugmakers, though many are unwilling or... + más
NIH to fund unproven ALS drugs under patient-backed law | ABC News
NIH to fund unproven ALS drugs under patient-backed law | WPLG Local 10
ABC News USA Business October 01, 2022
WASHINGTON -- When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay?Responsibility for funding so-called compassionate use has always fallen to drugmakers, though many are... + más
NIH to fund unproven ALS drugs under patient-backed law | Associated Press
WPLG Local 10 USA Politics October 01, 2022
WASHINGTON – When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay?Responsibility for funding so-called compassionate use has always fallen to drugmakers, though many are... + más
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