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Gene Treatment for Rare Epilepsy Causes Brain Side Effect in 2 Children

Por: The New York Times Health October 27, 2022

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Weeks after Valeria Schenkel took an experimental drug named after her, the daily seizures that had afflicted her from birth became less frequent. But the drug caused fluid to build up in her brain, and a year later, she died at age 3.The drug was given to only one other child, and she experienced the same side effect and nearly died last year.The drug contained snippets of genetic material tailor-made to turn off the mutated gene causing the... + full article



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