Por: ABC News Health October 01, 2022
WASHINGTON -- When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay?Responsibility for funding so-called compassionate use has always fallen to drugmakers, though many are unwilling or unable to make their drugs available for free to dying patients.After years of lobbying Congress, patients with the debilitating illness known as Lou... + full article
10 WBNS USA Nation October 03, 2022
WASHINGTON — When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay? Responsibility for funding so-called has always fallen to drugmakers, though many are unwilling or... + más
NIH to fund unproven ALS drugs under patient-backed law | ABC News
NIH to fund unproven ALS drugs under patient-backed law | WPLG Local 10
ABC News USA Business October 01, 2022
WASHINGTON -- When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay?Responsibility for funding so-called compassionate use has always fallen to drugmakers, though many are... + más
NIH to fund unproven ALS drugs under patient-backed law | Associated Press
Associated Press USA Business October 01, 2022
WASHINGTON (AP) — When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay?Responsibility for funding so-called compassionate use has always fallen to drugmakers, though many... + más
WPLG Local 10 USA Politics October 01, 2022
WASHINGTON – When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay?Responsibility for funding so-called compassionate use has always fallen to drugmakers, though many are... + más
NBC 6 South Florida USA World October 01, 2022
Erin Hooley/Chicago Tribune/Tribune News Service via Getty Images Sandra Abrevaya helps her husband, Brian Wallach, walk at their home on Feb. 13, 2022, in Kenilworth, Illinois. His tattoo means ALS: You Gone. data-ellipsis=false> When patients with a deadly diagnosis and few... + más
New York Post USA Life September 30, 2022
A much-debated drug for Lou Gehrig’s disease won US approval on Thursday from the Food and Drug Administration. The nod represents a long-desired victory for patients, though it is likely to renew questions about the scientific rigor behind government reviews of... + más
ALS drug wins FDA approval despite questionable data | ABC News
ALS drug gets FDA approval despite uncertainty about effectiveness | ABC7
RTTNews USA Health September 24, 2022
The U.S. Food and Drug Administration and the National Institutes of Health or NIH have launched Critical Path for Rare Neurodegenerative Diseases or CP-RND, a new public-private partnership to help people with rare neurodegenerative diseases. The agencies have selected the... + más
FDA concedes delays in response to baby formula shortage | Associated Press
FDA concedes delays in response to baby formula shortage | WPLG Local 10
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